Mom at the Ocean. It was a great day for she and I. Look at that grin!

Wednesday, June 18, 2008

Reality stinks

Good morning everyone!  Monday Kerry and I took Mom to her Oncologist for the results of her MRI and the good news is that she does not have any new brain tumors.  The doctor attributes her memory problems and confusion to the amount of pain medication she is taking.   Mom's transition into life at Kerry's has been very difficult.  Mom seems to be more tired and in more pain than I saw her in during the whole time we were in Florida.  I'd like to preface the rest of this Blog by letting everyone know that I read all of your comments to Mom and pass along notes. However, she will not be seeing this new post.  
Hope is a very delicate matter.  Mom has lots of hope, lots of fight, and tenaciously declares that she does not want to pass away.  While she has a hope for her future and knows that ultimately her soul is in God's hands, she wants her body to heal, not roll out a red carpet for cancer. I've grown to admire the fight Mom has in her, and I've seen her go through so much already in these last 4 months since the cancer returned.  When we went to the new Oncologist in March and he sent us for radiation he stated that the typical amount of time a person in Mom's condition lasts is 6-8 months.  Mom told him "I don't really like your shelf life" and chose alternative treatment. 
The time in Florida was the right thing to do.  We all agree that Mom would have passed away by now without going and the physical, emotional, and spiritual lessons she learned while there made the trip well worth while. While I admit that only God knows how much time each of us has on earth, and he's the guy in charge of the miracle department, God also gave us common sense and the signs are not pointing toward healing. 
A very kind hospice nurse has been out to the house to evaluate Mom and she tells us that Mom has no breath sounds in her left lung at all.  She also tells us that she has been working for hospice since 1995 and that in her opinion Mom currently as healthy and lucid as she is because she is young and has a strong heart.  If not for her heart, she would be gone already and although it is hard to judge, the nurse would say that Mom has about 30-60 days.  This would put her at the 6-8 month mark that her oncologist originally suggested. Based on what I have seen since our return from Florida, I agree. 
Like I said before, hope is a very delicate thing.  Mom has not accepted her 30-60 day sentence and refuses hospice care at this time.  As a family we decided long ago that we are all on "Team Nancy".  This means supporting and getting on which ever bus mom is on mentally.  Having said that, please remember us in your prayers time during this very difficult and surreal time as we grudgingly learn to say a peaceful good bye to our Mother, Wife, Sister, Aunt, Grandmother and friend.  If any of you want or need to come to town anytime soon, I would suggest doing it sooner rather than later.  We can certainly find a place locally to put you up.  The morbidity of talking about this strikes me as being wrong, but ultimately I think I would be remiss to paint an untrue picture.  Mom has expressed in the past, and her family agrees, that when Mom does pass, whether in 1 month or 20 years, that she wants her final resting place to be near our home, in NY. I mention this as it should help some of you from a planning aspect.
Mom cannot check her emails any longer.  If you would like to call or send a note please use Kerry's contact information:


Mom currently has round the clock care.  I'm taking Wednesday, Todd is taking Thursday's, Mike takes Friday and Saturday and Kerry and I will split up the remainder of the week.  Please keep us all in your prayers as we are tired, overwhelmed and all very emotional.... not a healthy mix on a good day, but we are attempting to make it through.  If you need to call me about anything please contact me at   
Much love,
Michelle 

8 comments:

tylertheman said...

i pray for your mother this post made me cry thow this is the first time i have posted to your blog my name is tyler whitehurst im 17 i know wat its like to lose someone close to you too cancer i lost my grandad to cancer after a long battle if you need anything just contact me at tylerthemanwhitehurst@yahoo.com

cranny + b said...

hey Michelle,
It was great to see you tonight--I am praying for you as you are helping your mom this evening. It was good to talk with my Kerry too. . .I know you guys are going through so much. I'll look forward to helping you guys any way that I can. Talk to you soon,
love and prayer,
Sarah

jess said...

glad you guys are home safe! we are praying - please let us know if there is anything we can do to help.

Bethany said...

Continuing to pray for you and trust our all wise God to comfort and strengthen you!!!

Dana Day said...

Michelle,

You are all in our thoughts and prayers. I've really been thinking about you so much and realizing how difficult and hard this has been on all of you. Please let me know if there is anything at all I can do for you. You are a very dear friend to me, and I will always be there for you.

Love ya,

Dana

Car said...

Hey! I don't think you'll remember me, but my dad (Russ Wing)was the pastor of Immanuel Baptist for about 5 years or so. My name is Carrie Arquette. :)
So anyway, will you let you mom know that we're continuing to pray for her. God says he has a plan for our lives to prosper us and give us a hope and a future. We are praying specifically that her future here on earth is for a lot longer! And her ultimate future, which is sealed in Heaven with the God of all the Universe, even though it's absolutely sure, we're praying that God'll just hold off for a while longer.
We just love Mike and Nancy and appreciate all they have done and continue to do for my folks--they've been such great friends and so much fun with my parents for quite a number of years now, and we miss them so much now that they're in VA and my folks are in NH!
Anyway, we're still praying for the Miracle we know God is able to do in her body.
Love to you all,
Carrie and Scott Arquette &
Tirzah, Lucy and Poppy :)

Tim, Kristen , Megan, Emily, and Anna said...

We just wanted to say that we are praying for you all as well.

Unknown said...

I am thinking of you and praying for you often. If I can do anything for you please let me know. Blessings, Valerie